Hello World!

Welcome to Celestial Cells. 

In my local medical community I’m known as an anomaly. Anomaly means something or someone who deviates from the norm, they do not fit in with what is expected, they are a rarity. Yes, doctors have actually said this to my face in several ways. The reason why they call me an anomaly is because I have Sickle Cell Anemia AND I am a survivor of Leukemia. So apparently for one person to have had both of these diseases in their lifetime is rare and unheard of. (Although, I don’t fully believe that.) 

Thankfully I have been in remission from Leukemia for multiple years. However I will always be living with Sickle Cell Anemia. A few years ago I was also diagnosed with Deep Vein Thrombosis. I will also have this for the rest of my life. Though my doctor said it’s more common for a “sickler” to have leg circulation issues as well.  

I began this blog because I feel there is a severe lack of access to people like me. I’m referring to other “sicklers”, people with Sickle Cell Anemia. In my internet research to find people like me, I only found those who were much older, mother’s who are healthy but have children with the disease, or medical journals on medicinal trials. 

I was also upset with the fact that the science and medical community still state “sicklers” life expectancy is 30 years old. I’m currently 29 years old (I’ll be 30 in one week). I have come across others who were older than I to great relief. I feel there needs to be a change, especially with the way science, medicine, and social media have grown. 

So here I am. I’ll be sharing with you my emotions and experiences with living with Sickle Cell Anemia. Hopefully I’ll give you a sense of hope and positivity. Hopefully you’ll find some helpful advice. Hopefully you’ll find yourself a little more educated. You may be here because you have the disease or because someone you know has the disease. I hope I can help you in some way. 

Thanks for being here on this journey with me.

Sincerely, 

Anomaly